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CANCER LINKS

Not all Online sites and advice are created equal. Here are some tips on evaluating them.

1) Check the creator. Web sited ending in .gov or .edu are the most reliable, and will contain more factual material and few if any anecdotal materials.

2) Look for credentials. Make sure the author or medical advisory board have the appropriate medical or health credentials.

3) Read the references. The web documents should include data and advice. Check if the information is recent. Look for a date.

4) Look for bias. Make sure the "health" site is not a disguised advertisement. Read headings carefully to check between facts and hype.

5) Use common sense.



Are you missing out on benefits? The National Council on the Aging has a web site to check: Benefits Check-up. www.benefitscheckup.org

www.advancedbc.org The author, Musa Mayer, has been a patient advocate since her diagnosis with Stage II Bca in 1989. Her site offers where support may be found, and many links for researching treatments.

www.acor.org This is the Association of Cancer Online Resources. It offers mailing lists, treatment resources, types of cancer, treatment options, clinical trials, publications, Lukemia links.

www.thefamilycaregiver.org

www.strengthforcaring.com

www.bymyside.com

www.cancersymptoms.org

familydoctor.org (The American Academy of Family Physicians)

www.OncoLink.org

www.CCAlliance.org

www.cancerconsultants.com This site offers a large number of articles in the news.

www.komen.org
The Komen Foundation offers some good informational booklets. Information on ordering can be found at 1-877-SGK-SHOP, or online at www.komen.org, check Marketplace.

Better Homes and Gardens and VSM Sewing Inc., join the Komen Foundation with Quilt for the Cure. Quilters will design, create, and submit quilt blocks that will be sewn together as quilts and auctioned off in a public setting to raise research and outreach funds. Information is at www.bhg.com.

Scams, shams, false alerts and warnings abound about cancer. Check out what is real at www.snopes.com . Also, get you accurate information from your oncologist, and from government and private cancer sites and centers, such as cancer hospitals, universities, research programs. I will try to keep you alert.

One million! That’s the number of people diagnosed with lung cancer worldwide each year according to Healthology.

www.DrugDigest.org
This is an Interaction Checker database with more than 5000 OTC drugs, supplements, and prescriptions. Here you can find 11,500 potential interactions; what meds and supplements you can and cannot mix

PDQ is a comprehensive cancer database of the National Cancer Institute, and is accessible at www.Cancer.gov. The site has summaries of the latest published information on cancer prevention, detection, genetics, treatment, support, and complementary and alternative medicine.

Look in on www.cycleofhope.org. It's the website of Lance Armstrong, Tour de France champion, who recovered from testicular cancer to race out ahead of the crowd as a world champion cyclist. Look at the Messages of Hope, and the 10 Tips for Families of Cancer Patients.

Visitors to this site can read the current issue of C-Word Letter and archived past issues. While you are here, stop by the newly launched C-Word Store.

Important! Go to this web site
www.thebreastcancersite.com
and click it to donate a free breast mammogram to an underprivileged woman. Men and women, please make this click.

Don't believe it! A story making the rounds has someone saying they attended a health seminar where they were told that anti-perspirants are a leading cause of BCa, and that, because they use this product, men are as much at risk as women. Researchers have identified a number of risk factors for BCa: age, diet, smoking, alcohol consumption, family history, lack of exercise, obesity. Anti-perspirants are not included. No one knows where this urban myth originated, but just ignore it. Check out this and other urban myths and legends at http://www.snopes.com

There is a proposal being put before the U.S.P.S. Citizens' Stamp Advisory Committee to approve an Ovarian Cancer Awareness Stamp. This would be a strong educational and awareness tool. You can find the petition at www.PetitionOnline.com.

Take a look at the www.brighamandwomens.org site. Health information topics are listed A to Z. There is an anatomy explorer, but it takes along time to load, and a drug database, and a medical dictionary. At the site store you can buy a "Breast Cancer Survivors Guide to Fitness" CD.

www.choosehope.com/newsletter It is a site of hope, humor, inspiration, and some very nice items for sale. A large part of profits from the sales go to research centers around the country. One of the first items, still available, was a button, "Cancer Sucks." It is also available as a mug. Look at their catalog filled with too many items to list here.

So how does a Ca* patient eat right? Be sure to check out www.ucsfhealth.org It is the site of the University of California Medical Center, one of US News' top ten hospitals. Natalie Ledesma, dietician for the Cancer Resource Center has prepared an excellent paper: Nutrition and Prostate Cancer. I assume it is used in the classes she teaches. Go to the UCSF website and contact the Cancer Center to see if you can obtain a copy; worthwhile and instructive reading.

http://www.join-the-circle.org/skins/default/display.aspx

"Cancer Facts & Figures,"and "Cancer Prevention & Early Detection Facts % Figures," can be downloaded from www.cancer.org.

www.healthfinder.gov - contains a health library, selected topics for kids, men, women by age, race ethnicity. An extensive site.

www.thelancet.com European site for cancer information. Medical journal connected.

www.PROSTATEinfo.com has 3 divisions: patients, professional, new and noteworthy.

www.preventcancer.org

www.skincancer.org

www.skincancer.org Home page of the Skin Cancer Foundation.

www.meddean.luc.edu/lumen/MedEd/medicine/dermatology/content.htm.

Loyola University Medical Education Net of Skin Cancer and Benign Tumor Image Atlas pictures of skin cancers.

www.nlm.nih.gov/medlineplus/skincancer.html News and medical information. There is an Interactive Tutorial.

www.mpip.org/ Melanoma Patients Information Page.

www.cancer.gov/cancerinfo/types/Skin

www.aad.org Skin Cancer Risk Profile (also has info in Spanish). American Academy of Dermatology.

www.ncsdf.org

Interested in herbs, botanicals, etc.? Check out the Memorial Sloan-Kettering Cancer Center site at www.mskcc.org/aboutherbs.

White Tea

www.harney.com has a good assortment of white teas from China and Ceylon. Prices range from $8 for 2 oz. to $27.50 for 30z.

www.adagio.com had three 1oz. samples for $7.

store.yahoo.com/tenren offers 20 tea bags for $2.90.

www.generationtea.com has interesting extended descriptions of their teas. They also have a section of health benefits, and kosher information.

For Free Things, here are some sites to check-out. Free Low Cost Medications: www.needymeds.com

www.pharma.org

Free Travel to Clinical Trials/Treatments www.aircareall.org

Free Patient Care Supplies www.cfoa.org

Karen Patterson of SC says of her breast cancer treatment that she "felt a sense of empowerment because I gained knowledge from the Internet and knowledge is power; patient power." Karen is founder of: www.womens-wellness.com.

Just been diagnosed? There is a helpful "tool kit" just for someone like you. The CANCER SURVIVAL TOOLBOX is prepared by the National Coalition for Cancer Survivorship, the Oncology Nursing Society, The Association of Oncology Social Work, and Genentec Bio Oncology. It's free! Get your copy at: www.cancersurvivaltoolbox.org

Corina Morariu, tennis star, back to playing in the U.S. Open fifteen months after being diagnosed with leukemia. She is the International Sports Ambassador for the Leukemia and Lymphoma Society. (Check www.CorinaTennis.com. )

www.sharedexperience.org An interesting support site for YOUR type of cancer – people sharing their experiences. Remember anecdotal material may not be accurate. These are shared stories

www.y-me.org This is the Y-ME National Breast Cancer Organization site, "Ensuring that no one faces breast cancer alone." Good goal, since two million women are living as breast cancer survivors in the U.S. today. You can submit questions to the site (or call 1-800-221-2141) ; join a monthly teleconference with a medical professional; find information you need.

www.edhealth.org Here prostate cancer patients can find the latest news about erectile difficulties and new treatments. Prostate cancer is the second leading cause of male death in the country.

www.cancer.gov/canceer_information

www.phoenix5.org/glossary

www.prostateinfo.com/patient/glossary

www.nlm.nih.gov (National Library of Medicine. Click Dictionary)

With 40,000 women dying annually (2000 figures), this is a site at which all our ladies should look. Check thoroughly The Susan G. Komen Breast Cancer Foundation at www.komen.org. The BreastCancerInfo click has good guides to what you want to, and should know, and there is a click to contact your Legislators on issues of concern.
If you are into a daily posting/chat session on cancer issues of all sorts, check in at The Circle web site at www.prostatepointers.org/circle. Although the site mainly is posted by prostate Ca (cancer) folks, there is abundant material and support for other kinds of Ca patients and care givers.

My Quebec family alerted me to a strong Canadian(actually world-wide network) site and newsletter. Look for it at www.cochrane.org.

Here are some of the features of the newsletter: a volume of information; the incidence of cancer in Europe is rising; the Cancer Library (software update); Breast cancer click www.hhsdirect.nhs.uk, which contains general and professional information. Good site.

www.chemocare.com, sports content by the Cleveland Clinic Cancer Center. There are four click & go boxes to direct you areas on interest. You can also click Survivor Experiences, cancer news, message boards, resources, and FAQs. Be patient! It can be slow to load.

National Cancer Institute has a very comprehensive online database at http://www.cancer.gov/. Especially check out PDQ.

http://www.Phoenix5.org/ This is a helpful private site by Robert Vaughn Young. There is an especially useful Prostate Cancer Glossary here. Incidently, Young, a survivor, had a PSA of over 1000.

Prostatepointers is another full and interesting location to which to point your cursor. Of interest is a sharing place called Circle, a moderated group of value for interaction for wives, families of men with PCa, and patients themselves, and survivors. For persons living in areas with no access to support groups, it is a worthy site. Check out http://www.prostatepointers.org/circle. Be prepared for daily mailings. It’s a good and concerned site.

Now here’s a place to get an excellent freebie. You can get a Cancer Survival Toolbox, and an audio resource program of six CD’s. http:/www.cansearch.org. The six CDs are meant for coping and surviving your cancer experience. Titles of the first three discs of Basic Skills are: Communicating, Finding Information, Making Decisions, Solving Problems, Negotiating, Standing Up for Your Rights. Programs on the second set of discs are : Topics for Older Persons, Finding Ways to Pay for Care, Care for the Caregiver. It’s a cooperative production by National Coalition for Cancer Survivorship, Oncology Nursing Society, Association of Oncology Social Work, and Gentech Bio Oncology. Go for it!